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VERY
ACTIVE FIBROID DISCUSSION GROUPS |
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These are
some of the most active Fibroid discussion groups on the web, they are mainly women sharing their experiences of
new & traditional surgeries, natural treatments,
hormone treatments, pregnancy etc. |
| Discussion
groups are where people email questions & answers to a group.They
cover may fibroid issues. It is free to join these groups. You can read the
messages & archives online or have sent to your email box, daily. Some
have Dr's that answer questions. Some provide emotional support to each
other by just being there for other members facing difficult decisions
alone. |
| GROUP
NAME |
DESCRIPTION |
LANGUAGE |
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Click Links |
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| National
Uterine Fibroid Foundation USA-Carla Dionne |
Very
active Uterine Fibroids eGroup sponsored by the National
Uterine Fibroids Foundation an email and web based discussion group
for individuals interested in researching and discussing all methods of
alternative treatments for uterine fibroids. This group discusses all
methods of treatment ranging from hysterectomy, myomectomy, uterine artery
embolization (UAE -- also known as uterine fibroid embolization or UFE),
myolyis, endometrial ablation, mifepristone (RU-486), female
reconstructive surgery (FRS or FAS), hormone replacement therapy (HRT) and
any other treatment option that a woman may be considering or have already
undergone in an effort to treat her uterine fibroids. This email list
group also supports and encourages discussion of other fibroids-related
topics, such as emotional issues, financial issues, sexuality, age,
ethnicity, symptoms, treatments, etc. Over 2,000 members including
International visitors. |
English |
| Embo
- National Uterine Fibroid Foundation |
This
is a Uterine Artery Embolization group for the treatment of uterine
fibroid tumors.To inform persons who are planning to have this procedure
done, and for those who have experienced the procedure to share their
experience and successes/problems. Very active group |
English |
| UK
Fibroid Discussion Group |
UK
& Ireland
group for discussing the problems associated with uterine fibroids and
finding treatment and solutions for the condition, and offering support.
UK Resources & Dr's. Womens own experiences with treatments. Highly
Recommended |
English |
| Gebaermuttermyome |
If
you'd like to discuss fibroids with other German women, join this group.
It has lists of recommended Doctors, where to get myomectomy or
embolisation. Women discussing Fibroids & Pregnancy. , Es sind
bei Dir Gebärmuttermyome festgestellt worden und Du bist in Panik? Was
tun bei Myom-bedingten schweren Regelblutungen? Ist die Gebärmutterentfernung
die einzige Behandlungsmöglichkeit? Du suchst einen Arzt, der auch "ältere"
Frauen Organ erhaltend operiert? Wie läuft es am Tag des Eingriffs in der
Klinik ab? Du bekommst keine Überweisung für die Embolisation oder Du
hast Probleme mit der Krankenkasse? Du möchtest Kontakt zu
myombetroffenen Frauen aufnehmen, die schwanger geworden sind und Kinder
geboren haben? In diesem Forum berichten Myombetroffene über ihre
Erfahrungen. Wir unterstützen Dich auf der Suche nach Information. |
German |
| TTC
Myomectomy |
This
mailing list is for women that are trying to conceive after having a
myomectomy |
English |
| Tampopo
Japanese Discussion Group |
Japanese
self-help group for the people who had experienced fibroid tumors (uterine
myomas). Their is, to share information and experience among members in
order to receive more agreeable and better medical treatment. Japan |
Japanese |
| Embo
Forum Japanese |
Japanese
Embolisation Forum.グループの説明:
子宮筋腫の動脈塞栓術について自由に話し合うフォーラムです。子宮動脈塞栓術(UAE)に関心があり、選択肢の一つとしてお考えの方に情報を提供すると共に、実際に治療を受けられた方の体験などを通して、この治療法に対する理解を深めることを目的とします。子宮動脈塞栓術以外の様々な治療選択肢についても話題が豊富ですので、どうぞ気軽にご参加ください。
2004年2月現在、メンバーのうちUAE体験者は250名以上、放射線科医・産婦人科医も30名以上参加しています。 |
Japanese |
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Fibroid
Network has its own Discussion Forum -CLICK HERE- .You can register
for free to post messages. Your email address will not be posted on our
public site with your message this is to protect your privacy &
prevent unwanted spam. You can also post your comments on articles, events
& resources or email us with your favourite discussions groups or
fibroid news. These are general Self-help support groups. You should
consult a fully trained medical Doctor for advice about your personal
health.
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